These organizations were of tremendous help as we navigated the challenges of PSP, Progressive Supranuclear Palsy.
Along with their incredible research efforts, BSN has provided an amazing support network of wonderful people traveling similar paths.
CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers, and healthcare professionals on prime of life neurodegeneration including PSP, CBD, MSA, and related diseases.
At UCSF, Sam participated in three different studies to help understand and solve the PSP mystery. At our monthly meetings we not only were able to contribute to the cause but were seen by the best experts in the field. They made us feel like they were all fighting for us.
Sam has donated his brain to UCSF for further research into this illness he suffered in the hopes that others might have better outcomes than he.